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Test all babies for rare genetic disease SMA, parents urge

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Nino Travagli Photography A couple, their five-year-old son and their baby daughter pose for a family portrait in front of a grey backdrop. The dad, on the left, has short brown hair and wears a white T-shirt. His son sits in front of him and has short brown hair and a matching T-shirt. The mum, on the right, has long blonde hair, partially plaited, and wears a white top and gold and purple wristbands. She is holding a baby girl who is wrapped in light green muslin and wears a green headband.Nino Travagli Photography

Rosie and Wes, from Driffield, East Yorkshire, with Marley, five, and baby Meadow

Two children with a rare genetic condition will live very different lives because one was tested at birth and the other was not, their…

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